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Community: Family Resources: Disability Specific: Intellectual/Developmental Disability

Community: Family Resources: Disability Specific: Intellectual/Developmental Disability offers family resources for children and adults with Intellectual/Developmental disabilities, their families and caregivers. For Family Resources for general or all disabilities, visit Community: Family Resources .

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

State Listings: AK / MA / NJ / WI (Official USPS State Abbreviations)

State Listings

Alaska

Mat-Su Services for Children and Adults, Inc. (MSSCA) is a non-profit corporation serving the Mat-Su Borough of Alaska. MSSCA offers a Family Support program, which supports individuals with developmental disabilities and their families so that personal and / or family crisis can be averted or minimized. In support of this program they offer information and referral, short term case management, crisis respite, advocacy and technical assistance. The Division of Mental Health and Developmental Disabilities (DMHDD) determines eligibility for this program. For more information, call (907) 352-1200 or e-mail mssca@mssca.org.

Massachusetts

The Association for Community Living a non-profit organization based in Springfield, offers services, advocacy and education for the developmentally disabled and their families of Western Massachusetts. Via their Family Support Service, they offer Support Groups, including Person Centered Planning, Family to Family, Latino Group and Sibling Support (Sibshops), Information and Referral, Teen Self-Advocacy Programs, Flexible Family Support Funds and Grants/Private Funds. To learn how the Association can help your family, call (800) 337-7791.

New Jersey

Family Resources Associates is a New Jersey non-profit agency located in Shrewsbury, NJ that offers services and a center for families with infants, children, adolescents and adults who are developmentally delayed or disabled. FRA's mission is to enhance the competency of the family and to strengthen the capabilities of each individual with a disability. FRA provides home-based early intervention for infants, therapeutic recreation programs and assistive technology services, along with family and sibling support groups. Their service area for home-based therapy is Monmouth County, NJ. Many of their assistive technology services are provided throughout the State of New Jersey. FRA offers services for any family with a child or family member with Down syndrome. These services include parent support, peer support, library, information, news, workshops and scholarships. To contact FRA call (732) 747-5310 or e-mail them at info@frainc.org.

Wisconsin

Hearthstone of Wisconsin of Sheboygan, Wisconsin, is above all a self-help organization designed to offer families of individuals with developmental disabilities assistance, guidance, advocacy and support in transition to community-based living. They are an excellent source of information and can help you plan for the most independent lifestyle possible for your loved one with a disability. They also plan a number of fun social events and can help you look for ways to develop "natural" friendships. For more information, call (920) 467-6481.

New Sign Developmental Disabilities Information Service, INC. is a private non-profit agency serving adults and children in the Southeast Region of Wisconsin who are diagnosed with developmental delays encompassing severe emotional or physical disabilities that create substantial limitations in pursuing daily activities. DDIS provides the services listed below through contracts with Luxvida LLC, Racine County Human Services Department, Community Care Organization, Inc. and private pay agreements.

Compass Wisconsin: Threshold (Racine//Kenosha/Walworth Counties)
Family Support Service Coordination (Racine County)
Children’s Long Term Support Service Coordination (Racine County) (Includes Specific Waiver for Autism Treatment Services)
Protective Payee Services/Fee for Service (Racine County)
Daily Living Skills Training (Racine County)
Supportive Homecare Program (Racine County)

For more information, contact the Developmental Disabilities Information Service,INC., 1220 Mound Ave Suite 312, Racine, WI 53404, Phone (262) 637-2707, Fax (262) 637-0266 and info@ddisracine.org

Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases. The Waisman Resource Center is a collection of several center-based programs that provide information and assistance to individuals who have questions about services and programs related to developmental disabilities and other special health care needs.

The Regional Centers for Children With Special Health Care Needs offer information and referral services to families of children with special needs which include recommendations of books, articles, videos and websites related to diagnosis, education, community living, emotional supports and more. They also offer parent connections and support via support groups through the county parent liaison program and parent training. CSHCN also offers the Wisconsin First Step Hotline, which is a 24-hour confidential information and referral service. This hotline can be reached at (800) 642-7837.
Healthy and Ready to Work is a demonstration project that promotes and supports the transition of adolescents with special health care needs from pediatric to adult health care, employment and independence.
The Family Resource Room is a room within the Waisman Center where families visiting the center can access information on developmental disabilities, special health care needs, programs and services.
The Katie Beckett Program is a program that provides Medical Assistance benefits to a category of children with special health needs.
The Parent Training and Advocacy Projects are a collection of several training and support projects that are intended to provide parents, family members and others with information and support to advocate for their needs.
- Parents As Leaders is a leadership training program that is focused on families with children age birth to 3.
- Early Learning Network brings parents and providers together to learn from one another and to advance system changes in early intervention ages birth through 8 years of age.
- Family Action Network is a community training and system change effort that is focused on family support for families with children with developmental disabilities and other special health care needs.
- Community Ties provides case management and community training on challenging behavior.
- Community Training and Consultation provides a variety of training on topics related to developmental disabilities.

For more on the topic of Intellectual/Developmental Disability

If you have questions or ideas, information and solutions that you would like to share with us, you may contact us by e-mail at: horizons@new-horizons.org or to use our NHU E-Mail Form or NHU Community Forum, click on the links below.

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