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Shutterfly is a website that you can set up a free family website to share family photos and messages with friends and family on the Internet in a gated community.
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs. Their website shares much information on health care policy and other issues relating to specialized health care. The site also offers links to helpful state and national health care resources, a listing of publications and fact sheets and much more. For information on how to become a member, call (888) 835-5669 or e-mail firstname.lastname@example.org.
Father's Network is a national organization dedicated to supporting fathers who are raising a child with a disability. They facilitate programs throughout the United States that offer support and mentoring programs, parent training and workshops, and more. They also offer a website that offers articles submitted by fathers of children with disabilities, resource links and a bulletin board. For more information, call (425) 747-4004, ext. 218 or visit their website.
Military One Source: Special Needs/Exceptional Family Member Connections program is now on the Military One Source website under Troops and Families: Special Needs. This program provides information on services and resources available to military families with special medical or educational needs. More specifically, the website features resources and information on financial issues, legal issues, medical care, education and family support. Members of the network can also contact other military families with special needs to share solutions to common problems. For more information, visit this website.MUMS is a National Parent to Parent Network, based in Green Bay, Wisconsin, which maintains a database of parents who have children with disabilities and are in need of peer support. MUMS matches parents throughout the United States according to age, geographical location, gender, and severity of their child's symptoms. If you are interested in joining the MUMS parent network, call (877) 336-5333 or e-mail email@example.com.
National Alliance for the Mentally Ill offers the Family to Family Education Program; a free 12-week course for family caregivers of individuals with severe brain disorders (mental illnesses). The course, available in communities throughout the United States, focuses on schizophrenia, bipolar disorder (manic depression), clinical depression, panic disorder and obsessive-compulsive disorder (OCD). The course discusses the clinical treatment of these illnesses and teaches the knowledge and skills that family members need to cope more effectively. For course locations, visit their website or call (800) 950-NAMI (6264).
Our Kids has a primary mission to provide information and support to parents of children, teens and adults with disabilities. The website features a chat area, a listing of helpful resources, listings of inspirational poems and more.
Disabled Parents offers valuable information for parents with disabilities and their families. The website features the parent empowerment network, which connects parents through an electronic mail listserv, which can facilitate a discussion on such subjects as accessible / independent parenting, societal attitudes toward parents with disabilities, pregnency, childbirth, and reproductive health issues, as well as general issues of child care and child rearing. The site also features helpful links, medical information, adaptive parenting aid information, and personal stories contributed by visitors.
Sibling Support Project is a National program dedicated to providing support for brothers and sisters of individuals with special health or developmental needs. The website offers a newsletter, as well as a listing of resources such as books, newsletters, videos, and movies related to those individuals who have a special-needs sibling. The project also offers a number of helpful workshops throughout the Seattle, Washington area concerning "Life-Long Issues Faced by Brothers and Sisters." For more information about this project, visit their website. If you would like to learn more about the workshops, call (206) 297-6368.
Special Needs Family Fun is an on-line community offering family fun and special needs resources to enhance the quality and fun of family life for families with disabilities. Their website offers a resource directory, an interactive chat room, an eGroup Forum and a multi-subject bulletin board.
Technical Assistance Alliance for Parent Centers is a national effort based in Minneapolis, Minnesota, that focuses on providing technical assistance for establishing, developing, and coordinating Parent Training and Information (PTI) Projects and Community Parent Resource Centers (CPRC). Their website features a listing of PTIs and CPRCs throughout the United States. The centers provide training and information to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children. This assistance helps parents to participate more effectively with professionals in meeting the educational needs of children and youth with disabilities. The Parent Centers work to improve educational outcomes for children and youth with all disabilities (emotional, learning, mental, and physical). For more information, call (888) 248-0822 or e-mail firstname.lastname@example.org.
Through the Looking Glass is a non-profit organization that serves families with one or more disabled persons in their family, parent or child. They have created clinical and supportive services, training and research .
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Mat-Su Services for Children and Adults, Inc. (MSSCA) is a non-profit corporation serving the Mat-Su Borough of Alaska. MSSCA offers a Family Support program, which supports individuals with developmental disabilities and their families so that personal and / or family crisis can be averted or minimized. In support of this program they offer information and referral, short term case management, crisis respite, advocacy and technical assistance. The Division of Mental Health and Developmental Disabilities (DMHDD) determines eligibility for this program. For more information, call (907) 352-1200 or e-mail email@example.com.
Stone Soup Group is a Parent Training and Information project for the state of Alaska, a statewide non-profit organization based in Anchorage, Alaska that provides support and assistance to families caring for children & youth with special needs. and a listing of additional helpful disability resources throughout Alaska. For more information, check out this website
Loving Your Disabled Child Community Parent And Family Resource Center, a parent-run center in Los Angeles, works to provide parents and families of children with disabilities emotional, educational, and spiritual support. More specifically, they offer a lending library, monthly parent support groups, parent to parent peer support, telephone support, the New Discoveries newsletter, computer and Internet access, educational workshops, home visits and parent advocacy. For more information, call (323) 373-0323.
Parents Helping Parents, located in Santa Clara, California, is a non-profit family resource center run for and by parents of children with special needs. They offer a number of services and programs, which include a comprehensive community resource library, support groups, information and referral, parent training, and much more. For more information, call (408) 727-5775 or e-mail firstname.lastname@example.org.
Family Network on Disabilities of Florida, Inc. is a statewide network of families and individuals who may be at-risk, have disabilities, or have special needs. Their mission is to ensure, through collaboration, that Floridians have full access to family-driven support, education, information, resources and advocacy. They also offer a "Friend-to-Friend" network through which families are referred to other families in the network. For more information, visit their website, e-mail email@example.com or call (800) 825-5736.
Parent to Parent of Georgia, a non-profit organization, offers information and support to parents of children with disabilities. They offer a special needs database of information, one-on-one parent support, parent support groups, as well as an online parent message board. They also offer an informative quarterly newsletter. For more information, call (800) 229-2038.
Family Support of New Jersey is the "one-stop-shop" clearinghouse on all disabilities. The center offers up-to-date information on local, state, and national support services for those affected by disabilities and a comprehensive array of FREE services. Contact the Family Support Center of New Jersey via phone, (800) 372-6510 (NJ only) or send e-mail using the form on their website.
Ohio SIBS (Special Initiatives by Brothers and Sisters) offers information and referral resources, support services and advocacy for adult siblings who have a variety of issues and responsibilities regarding their brothers and sisters with disabilities. On their website they offer answers to frequently asked questions, sibling stories, a listing of Ohio support groups and more. Visit their website to learn how you can get involved.
Special Needs Resource Directory created by the Complex Care Center at Cincinnati Children’s and supported by the Family Resource Center, can assist parents, caregivers and healthcare providers identify, evaluate and access necessary services and supports. Focused on children and youth with special health needs who have physical, developmental, behavioral or emotional conditions, the directory connects to local, regional and national websites to help you. For more information call our Family Resource Center at 513-636-7606 with your questions.
Family Resource Center for Disabilities and Special Needs promotes opportunities for learning, inclusion, and empowerment for individuals with disabilities and special needs, their families, and their communities. 1575 Savannah Highway, Ste. 6, Charleston 29407, Phone: (843) 266-1318, Fax: (843) 266-1941 , or send E-mail to: firstname.lastname@example.org
Developmental Disabilities Information Service, INC. is a private non-profit agency serving adults and children in the Southeast Region of Wisconsin who are diagnosed with developmental delays encompassing severe emotional or physical disabilities that create substantial limitations in pursuing daily activities. DDIS provides the services listed below through contracts with Luxvida LLC, Racine County Human Services Department, Community Care Organization, Inc. and private pay agreements.
Easter Seals Wisconsin offers a range of services to families of people with disabilities. Among them is their Respite Camp, which offers weekend or week-long camps for children and adults with mild to severe physical or cognitive disabilities. Their camp welcomes those who are often turned away by other programs due to requiring more individual attention. The Wisconsin Elks/Easter Seals Respite Camp is a fully accessible facility on 400 acres located near Wisconsin Dells, WI. Campers are matched one-on-one with a trained counselor in order to provide the best possible care. Medical care is provided by a nurse, who is on site 24 hours a day. If you need a break, the Respite camp is a great option. Easter Seals Wisconsin subsidizes about 40% of the actual cost for an individual to attend Respite Camp. (Actual costs are $625 for weekend sessions and $1,345 for a one week session). The remaining 60% must be provided by the camper or secured through other sources. To learn more, call (800) 422-2324 (toll-free), (608) 277-8031 (TTY).
Family Friends is a program offered by the Coalition of Wisconsin Aging Groups (CWAG) in collaboration with United Cerebral Palsy (UCP) of Southeastern Wisconsin. It is a unique intergenerational program offering older adults the opportunity to make a difference in the lives of children with special needs. The project pairs trained volunteers, aged 55 and older, with families who are caring for a child with a disability. The volunteer provides the family with support by sharing skills, by lending an ear and by simply offering a caring presence. If you are interested in getting involved with such a program, contact Becky Hipp, Project Director of the Family Friends program at (414) 329-4500.
Family Support and Resource Center provides in-home and community support to families in Dane County who are raising children with significant disabilities at home. Their Respite Care Program provides short-term, in-home care of a Dane County child or adult with developmental disabilities. Their Family Support Program offers financial assistance, information, and case management to Dane County families who are raising a child with significant disabilities at home. Their Community Inclusion Program facilitates connections between children with disabilities and their families and the larger Dane County community. To learn how the Center can help your family, call (608) 237-7630.
Hearthstone of Wisconsin of Sheboygan, Wisconsin, is above all a self-help organization designed to offer families of individuals with developmental disabilities assistance, guidance, advocacy and support in transition to community-based living. They are an excellent source of information and can help you plan for the most independent lifestyle possible for your loved one with a disability. They also plan a number of fun social events and can help you look for ways to develop "natural" friendships. For more information, call (920) 467-6481.
Parent to Parent: Wisconsin Support is the opportunity for parents raising children with special needs to connect with another parent who has already learned the language and found the resources…someone who has “been there.” Parent to Parent of Wisconsin provides parent support to parents of children with special needs through a one-to-one connection with another parent who has similar experience and who knows firsthand about the feelings and realities that come with having a child with special needs. Become a Support Parent. Support Parent Trainings for parents raising children with special needs that feel they are ready to become a Support Parent are held periodically throughout the state. Training dates can be found on their Trainings page.Southeast Regional Center, serving Southeastern Wisconsin, offers information and referral services to families of children with special needs which include recommendations of books, articles, videos and websites related to diagnosis, education, community living, emotional supports and more. They also offer parent connections and support via support groups, the county parent liaison program and parent training. You can contact the Special Needs Family Center by calling (414) 266-NEED or toll free at (800) 234-KIDS or by e-mail at email@example.com.
VICTORE (Visually Impaired Children: The Opportunities, Responsibilities and Expectations) offers programming for families with school-aged children who are blind or visually impaired, all free of charge. VICTORE is a collaborative project between the Center for Blind and Visually Impaired Children and the Badger Association of the Blind. They offer a variety of events throughout the year. They also offer an informative website, which features links to various helpful organizations and community resources. For more information, call (414) 355-3060.
Waisman Center is dedicated to the advancement of knowledge about human development, developmental disabilities, and neurodegenerative diseases. The Waisman Resource Center is a collection of several center-based programs that provide information and assistance to individuals who have questions about services and programs related to developmental disabilities and other special health care needs.
Wisconsin Family Assistance Center for Education, Training & Support, Inc. (WI FACETS) is a non-profit organization serving Wisconsin children and adults with disabilities, their families and those who support them. This organization was founded in 1995 by parents who believed that parents are the best advocates for their children. WI FACETS operates the following programs to help parents support and enrich their children's lives.
Wisconsin: Finding Your Way: A Navigation Guide for Wisconsin Families Who Have Children and Youth with Special Health Care Needs and Disabilities provides individual services and supports to families that include a child with severe disabilities. The guide offers information and help in finding services and maximizing community resources; limited funding to buy needed services and goods that can't be bought through other sources; help in linking families with other families to strengthen natural supports.
Disabled Parents Network offers supportive services for parents with disabilities throughout the United Kingdom. Such services include parental training, information and referral, and information hotlines. They also offer the Disabled Parents Network Helpline, which can be reached at 0870 241-0450.
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