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Community and Internet Resources

Community: On-line Disability Communities: Disability Specific:

Spinal Muscular Atrophy

New Horizons Un-Limited Community Forum and Topic Discussion Boards is our on-line disability community forum here at New Horizons Un-Limited. The link above will take you to our NHU Community Forum's Welcome Pages. Our NHU Community Forum enables you to post messages, use instant messaging, Share Your Knowledge, Tell Us What You Think, Review a Resource, post classifieds, and more. The following link will take you to our NHU Community Forum for people experiencing Spinal Muscular Atrophy.
NHU is not affiliated with any of the following disability communities and is not liable for any actions resulting from the visit to the linked resources. New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.
Warning! The resources below link to other on-line community forums in which people with disabilities may participate. Please be aware of the safety issues concerning the use of such online communities. It is not wise to share personal information (i.e. last name, address, phone number, social security number, etc.) to strangers you meet in discussion boards, newsgroups, chat rooms, etc. Please use your best judgment while visiting these on-line communities. For more information on using Internet forums, see our NHU Guide to Internet Discussion and Message Boards or Forums.


New Sign CureSMA Cure SMA has 35 volunteer-led chapters across the United States. Chapters support the mission of Cure SMA in several ways. Chapters provide a base of community and support for families affected by SMA, whether sharing practical advice or simply having someone nearby who understands what you are facing. Chapters keep their members informed of opportunities for local advocacy and awareness. CureSMA also has a facebook page at www.facebook.com/cureSMA/

New Sign Living with M.D is a peer-support group for adults (18+) living with Neuromuscular Disorders (NMDs). vision of empowering people with Neuromuscular Disorders to live our best lives. We have a diverse membership representing 10+ countries, providing insights into living with a significant disability throughout the world. We discuss a wide range of topics including, but not limited to: balancing health care needs with a personal life, managing personal care assistants, acquiring and using medical equipment, navigating social security and other government benefits, dating, sexuality, higher education, and employment -- always with the goal of helping one another. To join this group, prospective members must have a diagnosis of Muscular Dystrophy/Neuromuscular Disorder and be 18+. Sorry, no parents, caregivers or spouses. Visit their organization at NMD United. As with all facebook sites, you must login to Facebook to look at this page.

For more on the topic of Spinal Muscular Atrophy:
If you have questions or ideas, information and solutions that you would like to share with us, you may contact us by e-mail at: horizons@new-horizons.org or to use our NHU E-Mail Form or NHU Community Forum, click on the links below.

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[Updated March 31, 2017]
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