On-line Disability Communities: Parkinson's Disease
TweetParkinson's Disease
New Horizons Un-Limited Community Forum is our on-line disability community forum here at New Horizons Un-Limited. The link above will take you to our NHU Community Forum's Welcome Pages. Our NHU Community Forum enables you to post messages, use instant messaging, Share Your Knowledge, Tell Us What You Think, Review a Resource, post classifieds, and more. The following link will take you to our NHU Community Forum for people experiencing Warning! The resources below link to other on-line community forums in which people with disabilities may participate. Please be aware of the safety issues concerning the use of such online communities. It is not wise to share personal information (i.e. last name, address, phone number, social security number, etc.) to strangers you meet in discussion boards, newsgroups, chat rooms, etc. Please use your best judgment while visiting these on-line communities. For more information on using Internet forums, see our NHU Guide to Internet Discussion and Message Boards or Forums.
National
PatientsLikeMe was founded in 2004 and is a privately funded company dedicated to enabling people to share information that can improve the lives of patients with life-changing diseases. "To make this happen, we've created a platform for collecting and sharing real world, outcome-based patient data and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits." It first began with a group of patients with ALS, then quickly moved on to those with Parkinson's Disease. Recently added are groups for those with HIV and AIDS. This site is an excellent resource for patient, caregiver, doctor, researcher. Pages include Profile, where patients can keep track of their symptoms and treatments; Patients, an area to seek out other patients with similar symptoms; Forum, a message board; Treatments; Symptoms; Research. There are also pages for doctor visits, and for My Care Team. PatientsLikeMe can be reached by email: support@patientslikeme.com or by mail: PatientsLikeMe Inc., 222 Third Street, Suite 0234, Cambridge, MA 02142.
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