New Horizons Un-Limited Inc.
Includes Dizziness, Inner Ear Disorders and Meniere's Syndrome.
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New Horizons Un-Limited Publications
Dizziness and Me is an article written by Phil from Washington and submitted to New Horizons Un-Limited in which he has shared his personal, 33 year experience with a vestibular disorder, an inner ear disorder that causes severe dizziness and nausea.
Phil's experience with misdiagnoses and dizziness are unfortunately common with inner ear diseases. Through Phil's experience, we can all begin to understand the complications brought to daily living with vestibular disorders. Thank you to Phil for sharing his experiences and these helpful suggestions on what people with vestibular disorders need from their health professionals and rehabilitation.
Philippa’s Story: Living with Superior Semicircular Canal Dehiscence Syndrome from Eurodis.org - Rare Diseases Europe
"Philippa has superior semicircular canal dehiscence syndrome (SCDS), a rare balance disorder. SCDS is a developmental anomaly that occurs during the first three years of life and is thought to be caused by a lack of bone growth in the uppermost balance canal of the inner ear, which can cause a tiny hole to develop. ...
Sound or pressure can trigger abnormal activation of the balance canals in the ear, which in turn leads to a wide range of distressing and disabling symptoms." The very difficult reality for many people with vestibular syndromes is that doctors misdiagnose or miss them. Read more of Philippa's story to find solutions and rehabilitate from surgery from SCDS and all its disabling effects at the link above. Philippa's story adds that this is not as rare as once thought but, "It has been estimated that 10% of chronic dizzy patients could have SCDS, but many of these cases are possibly being overlooked."
Labyrinthitis.org.uk is a website developed by two ladies in the United Kingdom who suffer from what they call "uncompensated labyrinthitis". They have developed this website to provide information and support for other people who are experiencing ongoing vestibular disorders. As they say on their home page, the site is written by patients for patients. It is a very good website to help people suffering from inner ear dizziness to learn that they are not alone in their suffering, in being misunderstood by their family and friends, and in having difficulty finding a physician that can tell them what is really wrong. This website includes information about how the inner ear and balance systems work, a list of some of the symptoms a person might experience, the process of getting a diagnosis and some of the tests that might be used, information about VRT (vestibular rehabilitation therapy), and a very good section on coping with the disease and the misunderstanding of family and friends. This website includes stories of their experiences with dizziness written by the two women who developed this website. The stories show that finding help and making progress overcoming inner ear disorders is slow but there is hope. The website also has links to websites with information about vestibular disorders and support groups and a list of three books about living with vestibular disorders. For more information, send e-mail to firstname.lastname@example.org
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[Updated August 19, 2015]
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