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Disability Experiences

Disability Specific: Spinal Muscular Atrophy

Disability Experiences provides a place for you to express information about yourself, your experiences, stories, poetry, art, music, dance, advice or other creative writing. This collection of writings and websites have been submitted by our community or link to websites that share the personal disability experiences of people with disabilities. This section offers individuals a chance to experience other's ideas and thoughts. Also, if you wish to submit your own writing or website, please click on our Personal Experiences Form or Share Your Knowledge.

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgement and make your own decisions when using the information. Before making any change, consult your health care professional.

New Horizons Un-Limited Community Sharing Your Personal Experiences

Personal Experiences Resource Links

New Sign Our SMA Angels provides stories of personal experiences of warriors of the genetic disorder, Spinal Muscular Atrophy, many ages, strengths, faces, choices, lives, & stories-but ALL are angels. You will find the websites of more than a hundred children affected by this disease These are some of the bravest and most amazing children and families you will EVER have the privilege to meet.

New Sign Cole's Quilts, Creations of Love Etc. is a project to provide cross stitch Quilts of Love to children with Spinal Muscular Atrophy. Begun with the personal story of Cole Daniel Webb the project has given many quilts through many quilters. Check out their donor board at www.123stitch.com. To find out how you can contribute a quilt square, visit the website above or email colesquilts@hotmail.com.

New Sign Paytons Pals is the story of one family's experience with their son and Spinal Muscular Atrophy from his pregnancy to the age of four and the support they received from various sources, family and friends. This can be very informational, as well as inspirational, to know what to expect if your child is diagnosed with SMA.

New Sign SMA Voices - SMASupport UK from Spinal Muscular Atrophy Support from the United Kingdom, young people, families and adults affected by SMA talk about how they have managed the condition, overcome social and institutional barriers faced by people with disabilities and achieved ambitions.

For more on the topic of Spinal Muscular Atrophy:
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[Updated May 31, 2014]
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