Tourette Syndrome Community Support Groups and Organizations

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

National

Tourette Association of America is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. The Association develops and disseminates educational material to individuals, professionals, and to agencies; coordinates support services to help people and their families cope with the problems that occur with TS; funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments. Their website offers general TS information, a web section for those newly diagnosed, information on treatment and research, education and advocacy materials, and much more. For more information, visit their website, call (718) 224-2999 or e-mail support@tourette.org.

NJ Center for Tourette Syndrome and Associated Disorders, Inc. the world’s first Cell & DNA Sharing Repository with Rutgers University, worked with New Jersey legislators to draft and introduce the first federal legislation for Tourette Syndrome, founded the TS Clinic and doctoral training program at Rutgers, and pioneered the patient-centered medical grand rounds training in hospitals presented by professionals and youth affected by the disorder. Students, educators and parents have benefited from the School In-Service Program. Presenters have also brought educational programming to the classroom, hospitals, community organizations, law enforcement, and underserved communities. Families have found camaraderie at the annual Family Retreat Weekend and through NJ Walks for TS events. Many kids and teens have been through various youth development programs including the Tim Howard Leadership Academy.

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