Spina Bifida Support Groups and Organizations

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

National

Spina Bifida Association of America (SBAA) was founded in order to address the specific needs of the Spina Bifida community and provides services such as: toll free information and referral service, bi-monthly newsletter, bi-weekly legislative update, publications, professional advisory council, nursing council and many more. Also, the Agent Orange Assistant Program through SBAA is asking you to help spread the word to help find families of Vietnam Vets with children born with Spina Bifida. The Agent Orange Benefits Act of 1996 provides children of Vietnam veterans who were born with Spina Bifida with a monthly allowance, lifetime health care benefits and vocational and rehabilitation training.

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