Rett Syndrome Support Groups and Disability Specific Organizations

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

International

International Rett Syndrome Foundation is a partnership of parents and professionals united in purpose to bring greater understanding of Rett syndrome. Their website provides general information on Rett syndrome, diagnosis information, as well as information on day to day care, available treatments and therapies and the latest in research. They also offer the Rett Gazette, a free quarterly e-newsletter to their members. For more information, visit their website, call (800) 818-7388, or e-mail irsf@rettsyndrome.org.

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