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Community and Internet Resources

Community: Support Groups and Disability Specific Organizations

Muscular Dystrophy


Muscular Dystrophy Association (MDA) provides a large website of information for any of the 40 neuromuscular diseases in its program. The site offers information on research, services, clinics, diseases, publications, experts, ways to help, telethon and donations, and locations and phone numbers of MDA clinics, support groups and summer camps across the nation.

Muscular Dystrophy Family Foundation provides adaptive equipment and emotional support to individuals and families affected by one of over forty neuromuscular diseases covered under their program. Some of the adaptive equipment provided by MDFF are wheelchairs, hospital beds, van lifts, ramps for family homes, shower chairs, bath chairs, lift systems, breathing machines, clinic services, communication devices, braces and social outings. Support is available 24/7. For more information, call (800) 544-1213.

New Sign Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy. They offer a very informative website which features the latest on news and research concerning MD, information on treatment and care as well as a great listing of helpful resources. They also offer an annual conference at which doctors, scientists and parents come together to learn about the latest scientific research strategies, care options and advocacy issues related to Duchenne and Becker MD. For more information, call (800) 714-5437 or visit their website.

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[Updated July 29, 2005]
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