Birth Injury Community and Internet Support Groups and Disability Organizations for people with disabilities, their families and caregivers: New Horizons Un-Limited

Birth Injury Support Groups and Organizations

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgment and make your own decisions when using the information. Before making any change, consult your health care professional.

National
Country Listings: Ireland

National

BirthInjury.org is sponsored by the Midwest Brachial Plexus Network, Inc., a non-profit organization providing support and information to those touched by brachial plexus injury. Brachial plexus injury (bpi) is an injury that causes paralysis to one or both arms. Most bpi's happen during delivery of an infant, however trauma later in life may also result in a bpi. The injury can be temporary or it may cause a permanent disability. At this site you will find the most complete information about brachial plexus injury, available treatments, legal information, articles, FAQ and support services. We are dedicated to helping parents help their injured children. We also strive to provide information to the medical community so that doctors can prevent as many bpi's as possible and give prompt and accurate treatment when the injury does occur.

National Rehabilitation Information Center (NARIC) provides access resources for employment, advocacy, benefits and financial assistance, education, technology, and more. Search their website for Research. For more information, contact the NARIC at 4200 Forbes Boulevard, Suite 202, Lanham, MD 20706-4829, or Tel: 301-459-5900/301-459-5984, (TTY) 800-346-2742, or Fax: 301-562-2401.

National Organization for Rare Disorders (NORD) search the website. For more information, contact the NORD at P.O. Box 1968,(55 Kenosia Avenue), Danbury, CT 06813-1968, or Tel: 203-744-0100, Voice Mail 800-999-NORD (6673), or Fax: 203-798-2291

United Brachial Plexus Network (UBPN) is a registered non-profit 501(c)3 organization devoted to providing information, support and leadership for families and those concerned with brachial plexus injuries worldwide. Available resources include: website; online registry, various outreach and awareness programs, and outreach, in-depth publications, an annual comprehensive resource directory and message boards. For more information, contact them at 1610 Kent St., Kent, OH 44240 or call Toll Free Phone Number: 866-877-7004 or Fax Number: 866-877-7004 or send e-mail to info@ubpn.org

Country Listings

Ireland

Erbs Palsy Association of Ireland is an officially recognized charity run by families and adults affected by Erbs Palsy for adults and parents of children with this birth injury. Their aim is to provide information and support for families and sufferers of Erbs Palsy. The Association strives to achieve better recognition and understanding of the nature, causes, and proper treatment of the condition.The website offers information about Erbs Palsy, family, education, medical, and treatment issues and a glossary of terms, information publications, news and useful links Send e-mail to: info@erbspalsy.ie or telephone 0818 300 200.

S.N.A.P. Special Needs Active Parents is an organization focused on that having a child with special needs can be a frightening and lonely experience. S.N.A.P. offers support for each other as we are all families with children who have special needs. Branches within Ireland. For more information, send e-mail to info@snapireland.net.