Research resources on Intellectual/Developmental Disability for people with disabilities: New Horizons Un-Limited:

Research: Disability Specific Resources: Intellectual/Developmental Disability

New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgement and make your own decisions when using the information. Before making any change, consult your health care professional.

National

Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Center for Disease Control and Prevention established regional centers of excellence for autism spectrum disorders (ASDs) and other developmental disabilities. These centers make up the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) Network. The CADDRE Network is currently working on the Study to Explore Early Development (SEED) � a five-year, multi-site collaborative study to help identify factors that may put children at risk for autism spectrum disorders (ASDs).

The Centers for Disease Control and Prevention provide research on Developmental Disabilities, which are a diverse group of severe chronic conditions that are d ue to mental and/or physical impairments. Developmental Disabilities include 5 specific diseases: Autism Spectrum Disorders, Cerebral Palsy, Hearing Loss, Intellectual Disability and Vision Impairment. The CDC offers information on monitoring the disability, research, prevention, and education materials. CDC monitoring provides reliable, population-based estimates of the number of school-aged children with developmental disabilities. Disability monitor information gathered through CDC can be used by policy makers to assess current public health programs, regulations and authorizations for individuals with developmental disabilities. The CDC lists research, offers information on prevention, education materials which include materials for teachers, lesson plans and monitoring, research and disability fact sheets.

Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Centers sponsored by the National Institute of Health, research into the causes and early diagnosis of intellectual disabilities. Researchers affiliated with these centers conduct studies to better understand the causes of such disorders and to pursue new avenues for treatment. Investigators at one center, for example, identified a source of adult stem cells in the brain. Such cells, which can develop new tissue, could one day be used to delay or prevent developmental diseases.

Journal of Intellectual Disability Research editors make one paper per issue freely available for a limited period. See their recommendation for this month.

Institute for Basic Research in Developmental Disabilities (IBR) is the research arm of the New York State Office For People With Developmental Disabilities (OPWDD). IBR conducts basic and clinical research into the causes, treatment, and prevention of mental retardation and other developmental disabilities. It also provides specialized diagnostic and consultative services to individuals with developmental disabilities and their families, and educates the public and professionals regarding the causes, diagnosis, prevention, and treatment of developmental disabilities. The goals of IBR’s research, service, and education programs are to provide for prevention, earlier detection, and improved treatment of mental retardation and other developmental disabilities. The administrative offices are located at 1050 Forest Hill Road, Staten Island, New York 10314-6330, or Phone: (718) 494-0600 & (718) 494-5117, Fax: (718) 494-0833

National Institute of Health Fact Sheet on Intellectual and Developmental Disabilities lists the research developing for newborn screening, causes and early diagnosis of IDD and DD, health disparities, Fragile X syndrome, research in lowering a babies body temperature in the first six hours of life to prevent disability from hypoxic ischemic encephalopathy, and other research.