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Library and Research


Research: Disability Specific Resources: Autism



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National  
Country Listings:   United Kingdom    (Official USPS State Abbreviations)

National

Autism Speaks is a national autism research foundation. This foundation is dedicated to funding global biomedical research into the causes, prevention, treatments, and cure for autism; to raising public awareness about autism and its effects on individuals, families, and society; and to bringing hope to all who deal with the hardships of this disorder. They are committed to raising the funds necessary to support these goals. Autism Speaks aims to bring the autism community together as one strong voice to urge the government and private sector to listen to their concerns and take action to address this urgent global health crisis.

Children's Hospital Research Center for Autism and Related Disorders of Boston Massachussetts, care is informed by their research. To tackle autism spectrum disorders (ASDs), researchers throughout the hospital are conducting a wide variety of studies to understand what triggers ASDs, find ways to diagnose them early and identify the most effective treatments. - See more at:Autism Spectrum Disorders

New Sign National CADDRE Study: Child Development and Autism by the U.S. Centers for Disease Control and Prevention and five other research centers will study children with autism for five years in a very large and comprehensive research that will look at genetic and environmental factors that may contribute to autism. For more information on this study, visit the CDC link above and check out the following article at MSNBC: CDC funds largest-ever study of autism 2,700 kids to be followed over 5 years in landmark research effort

M.I.N.D. Institute is an international, multidisciplinary research organization, committed to excellence, collaboration and hope, striving to understand the causes and develop better treatments and ultimately cures for neurodevelopmental disorders. Standing shoulder to shoulder, families, scientists, physicians, educators, and administrators are working together to unlock the mysteries of the mind. Neurodevelopmental disorders, such as autism, fragile X syndrome and learning disorders are increasingly recognized. It is likely that you know an individual with one of these disorders. At the M.I.N.D. Institute, the "race is on" to identify the causes and develop better treatments, interventions, and preventions for the neurodevelopmental disorders that affect children and families around the world. While much work needs to be done, UC Davis M.I.N.D. Institute is committed to using an integrated, comprehensive research approach to understanding the causes and finding cures for these neurodevelopmental disorders.

The Study to Explore Early Development (SEED) is a multi-year study funded by CDC. It is currently the largest study in the United States to help identify factors that may put children at risk for autism spectrum disorder (ASD) and other developmental disabilities. Understanding the risk factors that make a person more likely to develop an ASD will help us learn more about the causes. SEED Fact Sheet .

The Waisman Center at the University of Wisconsin-Madison is a new site for SEED. The Waisman Center is one of the first research centers in the United States to focus solely on intellectual and developmental disabilities in children. It brings research scientists, clinicians, educators, advocates, and students together under one roof to advance knowledge while providing care for individuals with developmental disabilities and their families. The University Center for Excellence in Developmental Disabilities located within the Waisman Center helps ensure that individuals with developmental disabilities and their families receive the care and supports they need to thrive in their communities. The Waisman Centerís Autism and Developmental Disabilities Clinic provides the full spectrum of medical, intellectual, behavioral, and developmental assessments for children with autism and other developmental disabilities. Investigators also study typically developing children to learn about how they acquire language and many aspects of health and development across the life course.


Country Listings


United Kingdom

University of Cambridge, Autism Research Centre Asperger Syndrome (AS) Sibling Pair Project is looking for adults or children who are diagnosed with AS to take part in a new genes project, along with their brothers and sisters. This new worldwide study involves collecting a DNA sample and a questionnaire from individuals with Asperger Syndrome and their biological brothers and sisters. Providing a DNA sample is quick, easy and a completely painless process. This research may enable them to identify specific genes involved in Asperger Syndrome, furthering our understanding of the condition and possibly leading to earlier diagnosis. For further information please go to the link above or email Sally Wheelwright: sjw18@cam.ac.uk. This new study involves collecting a DNA sample and a questionnaire from individuals with Asperger Syndrome and their biological brothers and sisters. They claim the DNA sampling is quick, easy and a completely painless process - cotton buds are wiped inside the cheek. Participants are under no obligation to participate, but if you do take part you may leave the study at any time without any need to give a reason. This study has the approval of the UK Multi Regional Ethics Committee. All data are held in strictest confidence for this study alone.


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[Originated January 31, 2007, Updated November 30, 2017]
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