This guide for caregivers is written by our staff and many volunteer parents. One usually does not begin to look for something until one is at need. Becoming a caregiver may be something that just happened to you as a parent, a sister, brother, neighbor or friend. It is important however, to consider and investigate how to be a good caregiver and how to take care of yourself as a caregiver before you assume the role as caregiver of a person with special needs or disabilities. Being informed may assist you in avoiding stress and burnout, both hazards of caregiving. When you take care of yourself, you insure your caregiving for the person in need. The guide offers many resources on training, caregiver tips, how to find someone for respite care and financial resources for caregiving.
A new guide for caregivers of loved ones with Alzheimer's Disease submitted to NHU from Marvin, a caregiver whose wife has been experiencing Alzheimer's Disease for several years.
Guide to Searching for and Selecting a Home Health Aide
[Created January 30, 1998 [Updated March 31, 2009]
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Choosing a Caregiver: A Guide for Individuals and Families with Special Needs
This guide, published by the South Carolina Department of Disabilities and Special Needs offers hiring tips for consumers and families, an interview checklist, safety tips, information on developing an emergency plan, as well as a number of helpful checklists and worksheets.
From Disability.gov this guide provides a list of weblinks for finding out information about finding and using family caregivers, Medicare, Help for Caregivers, Caregiving Tips, Caregiver Support for the caregiver of Veterans, State Respite Coalitions, Local Aging and Disability Resource Centers, Managing Medications and much more.
by Civita Dyer this article is on the eHow website. This article gives tips for caregiving. The following is the introduction: "Working from home and caring for a disabled person can be quite a challenge. This depends on how much care the person actually needs. If they are able to primarily care for themselves, you may only have to prepare meals and provide transportation. Other individuals may require round the clock care. The ultimate goal is to be able to complete your work in a timely fashion and also give the individual the care that they need. This may seem a lot to take on at first, but if you are determined to make it work, it can be well worth it for both you and the disabled individual."
Family Caregiver Alliance has an article that acts as a guide in giving caregivers a better understanding of the difference between “Physicians and Providers.” Many times the number of appointments anyone person has, is more than they need, or can make. Family Caregiver Alliance is explaining the differences in Physicians and Providers to ensure caregivers have a better understanding of who has a medical degree, and what different ptoviders are used for.
National Institute of Dental and Craniofacial Research National Institutes of Health offers Practical Oral Care for People with Developmental Disabilities for health care professionals and caregivers and also offers the Practical Oral Care for People with Intellectual Disability. These are very practical and comprehensive guides on oral care.
Scoop Essentials: How to Get the Break You Need
This is an article on the Disability Scoop website, a premier source for disability news. This article offers good advice to the caregiver of a person with a disability on why caregivers should not be afraid or feel guilty about asking for help for respite care but accepting the need for help as a strength as to recognize the importance for the cared and caregiver. The article briefly explains what to do to find respite care, the many types of respite providers and what to do when you find one.
This guide is on the American Heart Association website from the National Family Caregivers Association and written with the health of the caregiver in mind.
Transition to Adult Care: A Training Guide
This guide, published by The Waisman Center at the University of Wisconsin, serves as a reference for anyone interested in helping young people with special health care needs and their parents prepare for transition to adult health care.
The Surgeon General’s Call to Action to Improve the Health and Wellness of Persons with Disabilities
While issued in 2005, this call to action is still very relevant today. The Call to Action calls on health care service providers, community leaders, advocates, and the public to work together to address the challenges facing people with disabilities in accessing health care and wellness services so that all people live long, healthy, productive lives.Back to Top
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