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International Rett Syndrome Foundation is a partnership of parents and professionals united in purpose to bring greater understanding of Rett syndrome. Their website provides general information on Rett syndrome, diagnosis information, as well as information on day to day care, available treatments and therapies and the latest in research. They also offer the Rett Gazette, a free quarterly e-newsletter to their members. For more information, visit their website, call (800) 818-7388, or e-mail firstname.lastname@example.org.
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[Updated February 27, 2004]
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