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Community and Internet Resources


Community: Support Groups and Disability Specific Organizations

Brain Injury


National
State Listings: CA / MN / NH / VA / WI (Official USPS State Abbreviations)
Country Listings: Australia


National

BrainandSpinalCord.org offers information and resources to families and individuals impacted by Brain Injury. The site focuses on recovery and rehab, research and treatment, and offers coping strategies.

Brain Injury Association of America has a mission to create a better future through brain injury prevention, research, education and advocacy. They offer an informative website that features a discussion of brain injury trauma, information on injury prevention, treatment and rehabilitation, a listing of helpful national conferences and resources as well as personal experiences of others who have obtained a brain injury. They also offer a national Family Helpline that can be access by calling (800) 444-6443. For more information, call (703) 236-6000 or write to Brain Injury Association of America, 105 North Alfred Street, Alexandria, VA 22314.

Brain Injury Resource Center is a service of the Head Injury Hotline, a resource providing difficult to find information about head injury since 1985. The site is designed to empower you to identify services, and resources specific to your particular needs and objectives. Additionally, it will help you to formulate, evaluate and implement, goal directed action plans. If you don't find what you're looking for give them a call, chances are tehy can help you find the information and resources you need. They can be contacted by caling (206) 621-8558.

New Sign Brainline.org is a national multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury. BrainLine serves anyone whose life has been affected by TBI. That includes people with brain injury, their families, professionals in the field, and anyone else in a position to help prevent or ameliorate the toll of TBI. Through BrainLine, they seek to provide a sense of community, a place where people who care about TBI can go 24 hours a day for information, support, and ideas. For more information, visit their interactive website or send E-mail to : info@BrainLine.org

Centre for Neuro Skills is a postacute medical treatment facility for individuals recovering from acquired brain injury. Their website provides extensive information on traumatic brain injury, brain injury recovery, and post-acute rehabilitation. Their website features listings of helpful resources, articles and books, the latest TBI news and much more.

Dana Foundation, The is a private philanthropic organization that supports brain research through grants and educates the public about the successes and potential of brain research. The Foundation has put together several TBI resources and tools, which include:

International Brain Injury Clubhouse Alliance is a collaborative network of Clubhouses that serves persons with brain injury and stroke. In a Clubhouse, members work together to support each other in the pursuit of personal goals. The Clubhouse encourages community re-entry, the rebuilding of social relationships and the training of skills required to return to productive activity. The Clubhouse is divided into four main areas: Work Ordered Day, (which consists of Units such as Kitchen and Business), Employment, Education, and Evening/Weekend activities. To find a clubhouse in your area, visit the Alliance website.

Life with TBI is a website developed by a traumatic brain injury survivor. The site offers numerous creative writings, Q&A, links and resources and much more..

TBI Community, an online resource created by The Rehabilitation Research and Training Center (RRTC) on Community Integration of Persons with Traumatic Brain Injury (TBI), provides information to individuals with TBI as well as the professionals that work on their behalf. Their website features numerous guides and videos.

The Perspectives Network, based in Cumming, Georgia, has a mission to encourage communication between persons with brain injury, their families, caregivers and friends, as well as those many professionals who treat persons with brain injury. Their website features a frequently asked questions section, an archive of helpful articles, a database of reference materials and survival tools, a listing of various relevant resources, a message board and a guest book.

Traumatic Brain Injury Resource Guide is the internet's central source of information, services and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation. Their website features listings of helpful resources, articles and books, the latest TBI news, a discussion board and much more.

Traumatic Brain Injury Survival Guide is an online book written by Dr. Glen Johnson, a Clinical Neuropsychologist. This comprehensive book offers a wealth of information on TBI, discussing the following issues, Common Indicators of a Head Injury, How the Brain is Hurt, Understanding How the Brain Works, Coping with Common Problems (Memory, Headaches, Problems Getting Organized, Getting Overloaded, Sleep Disorders, Fatigue, Anger and Depression, Word-finding), Dealing with Doctors, Family Members: What You Can Do In the Hospital Setting, Seizures, Emotional Stages of Recovery, Returning to School, When Will I Get Better?, and Who Are All These Professionals?


State Listings


California

Betty Clooney Foundation provides a range of services to individuals with Brain Injury. Via their Case Coordination service, the foundation provides one-on-one assistance in locating medical care, residential services, legal services, substance abuse treatment, education and benefits assistance. Via their Vocational Supportive Services they provide supported employment services and job coaching, counseling, and placement services. The foundation also provides programs and support to veterans who sustained brain injuries in combat.


Minnesota

Minnesota Brain Injury Association


New Hampshire

Brain Injury Association of New Hampshire is a non-profit organization working to create a better future through brain injury prevention, education, advocacy and support. They offer the Family Helpline - (800) 773-8400 and a Resource Library offering survivors, families, professionals and the general public free information, resources and referrals about brain injuries. They also offer monthly support groups, family advocacy, and much more. Visit their website to learn more.


Virginia

Community Brain Injury is a non-profit clubhouse for survivors of brain injury serving 3 locations in Richmond and Newport News, Virginia. Through the process of the work-ordered day, members not only relearn work skills and behaviors, but also develop skills necessary to live more independently. The benefits of participation in the Clubhouse, though, are more than just redeveloping work and independent living skills. By introducing survivors of brain injury to the Clubhouse, members gain self confidence, purpose, connections, and an opportunity to fully rejoin their community. For more information, contact Jason Young, Executive Director, 7812 Shrader Road, Richmond, Virginia 23294, Phone: 804.261.7050 voice, 804.261.7059 fax or send E-mail to: jason@communitybraininjury.org


Wisconsin

Brain Injury Association of Wisconsin (BIAW) was established in 1980 by a group of individuals with brain injury, their families, friends, and professionals. BIAW provides services in these 5 core areas: Information and Resources, Education, Prevention, Advocacy and Support Services. For more information, call (800) 882-9282.

Milwaukee Area Self Help (M.A.S.H.) is a support group for people that have sustained a brain injury. In addition to monthly supportive meetings, which are scheduled the second Tuesday of every month, they also arrange various social outings. Past outings have included sporting events, trips to the zoo and movie nights. For more information, call (414) 761-3186.


Country Listings


Australia

Adelaide Hills Neurological Support Group offers a support group that meets every 3rd Monday at the Community Health Centre located at Wellington Road Mount Barker South Australia. They also offer a beginners computer class, guest speakers and a number of social activities. For more information, call (08) 8393 1833.


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[Updated November 30, 2016]
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