Aphasia Community Support Groups and Organizations
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New Horizons Un-limited is not endorsing and assumes no responsibility in guaranteeing the products, services, programs or conditions as described. If you are interested in a resource listed below, call or contact the resource to verify the current situation. Evaluate the information, analyze your unique circumstances, use your best judgement and make your own decisions when using the information. Before making any change, consult your health care professional.
National
State Listings:
CA / NJ / PA
(Official USPS State Abbreviations)
Country Listings:
Australia / Canada
National
Aphasia Hope Foundation is a non-profit foundation that has a two-fold mission: (1) to promote research into the prevention and cure of aphasia and (2) to ensure all survivors of aphasia and their caregivers are aware of and have access to the best possible treatments available. They offer a very informative website which provides insightful tips for living with aphasia and shares personal experiences of aphasia survivors. The site also features resource lists, research articles and studies, news, a listing of aphasia-related conferences, and much more.
Brain Injury Association of America (BIAA) was founded in 1980 and is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 5.3 million Americans currently living with traumatic brain injury and their families. BIA USA is located at 8201 Greensboro Drive, Suite 611, McLean, VA, 22102, Voice: (703) 761-0750, Toll-free Voice: (800) 444-6443, 9 a.m. - 5 p.m., Eastern time, or Fax: (703) 761-0755 or send e-mail to familyhelpline@biausa.org
Brain Injury Recovery Network have developed this site in an attempt to provide practical, actionable advice for brain injury victims and families. Their goal is to see that victims of brain injuries are given every possible chance to recover. The site explains the complications and how "brain injuries can commonly cause a number of communication related deficits. Some are transient while others are permanent. Some of the deficits may be as a result of the damage to particular communication centers in the brain causing one or more forms of aphasia. Other problems may be a result of motor problems or weaknesses caused by other complications. Some people may have difficulty with the more subtle aspects of communication, such as body language and emotional, non-verbal signals. Communication disorders are complex and need to be identified and treated by speech pathologists."
National Aphasia Association is a non-profit organization that promotes public education, research, and rehabilitation and support services to assist people with aphasia and their families. Their website features facts and information on Aphasia, personal accounts, a nation-wide listing of support groups, a pen pal registration service and an informative newsletter. For more information, visit their website.
National Institute of Deafness and Other Communication Disorders offers this health page on aphasia and answers your questions about aphasia.
National Stroke Association is the only national organization in the United States that focuses 100% of it's efforts on stroke. NSA achieves its mission to lower the incidence and impact of stroke by developing compelling community outreach programs, calling for continued improvement in the quality of stroke patient care, and educating both healthcare professionals and the general public about stroke. Established in 1984, NSA has never lost sight of its vision to reach as many individuals as possible and be a beacon of hope for stroke survivors. They strive every day to increase public awareness about stroke prevention, symptom recognition, treatment options and rehabilitation.
National Stroke Association is located at 9707 East Easter Lane, Englewood, CO 80112 or call toll-free: (800) 787-6537.
Stroke and Aphasia Info is a site sponsored by Bungalow Software, Information on Aphasia, Therapy at Home, Support Groups, a free newsletter and survivor stories for people with aphasia and their caregivers are included on this site.
State Listings
California
Aphasia Center of California works with stroke survivors, family members, and co-workers to help them understand how aphasia affects their daily lives. They assist with enhancing communication skills and maximizing psychosocial well-being for all those affected by aphasia following a stroke. For more information, call (510) 336-0112.
New Jersey
Adler Aphasia Center, Maywood, NJ is a 15 minute drive from New York City. This center welcomes people with aphasia, their caregivers, family and friends and offers support, caring and encouragement as well as meaningful programs and activities. The center provides volunteer opportunities and invites you to call about ways to get involved. Their goal is to respond to what you want that will help you get on with your life. They offer support and discussion groups, lectures and workshops, and computer instruction. The Adler Aphasia Center is located at 60 West Hunter Avenue, Maywood, NJ 07607
or Phone: 201-368-8585, Fax: 201-587-1909 or E-mail: info@adleraphasiacenter.org
Pennsylvania
MossRehab Aphasia Center, Philadelphia, PA was developed to address the unmet needs of people with aphasia and their families and is a comprehensive aphasia center. It is a place where people can find information and peer support, as well as participate in on-going research and treatment. MossRehab Aphasia Center is a joint effort between MossRehab and Moss Rehabilitation Research Institute, one of the nation's leading aphasia research centers.
Country Listings
Australia
Talkback Association for Aphasia is an Australian organization devoted to helping people with aphasia. They welcome penpals with aphasia! It can be very difficult to understand and live with aphasia. Contact them at The Talkback Association
for Aphasia Inc., 23A King William Road, UNLEY SA 5061, Fax: 08 8357 2211 and Phone 08 8357 2211 or E-mail talkback@picknowl.com.au.
Canada
Aphasia Institute, Toronto, Ontario is a partnership of individuals with aphasia, family members, volunteers, staff and supporters, dedicated to reducing language barriers to full-life participation at local, provincial, national and international levels. As a teaching and learning center, they provide service to people with aphasia and their families in the Toronto, Greater Toronto Area through the Pat Arato Aphasia Centre. They also work to inspire others, both locally and further afield, through advocacy and awareness, education and training, and applied research and resource development.
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